Table of contents:
Background - the story so far
Since 1994, the CSDA MDS collection has provided funding bodies, service providers, service users and other stakeholders with information about services delivered under the CSDA and the people receiving these services. It is essential to collect accurate, quality data to assist in the provision of services and inform policy making. To facilitate an improved national collection of this information, the redeveloped CSDA MDS is being extended from a 'snapshot' collection, on one day a year, to a full-year collection. Further information about what the new collection will look like is contained later in this newsletter.
Field testing complete
Throughout October and November 2001 State, Territory and Commonwealth funding departments undertook Round 3 field testing. The participation of funded agencies from around the nation was high and very helpful. The goal of this final round of field testing was to confirm and refine the final set of data items for the redeveloped CSDA MDS. The feedback received from Round 3 field testing aided significantly in the finalisation of the data items and collection materials. The Facilitation and Implementation Group (FIG) together with the Australian Institute of Health and Welfare (AIHW) would like to thank all funded agencies, service users, consumer groups and advocates for their involvement throughout the three rounds of field testing for the CSDA MDS redevelopment project.
Why has the redevelopment project timetable been extended?
Following Round 3 field testing a number of States and Territories expressed the concerns of their funded agencies about the proposed April 2002 live pilot. Many funded agencies stated that they needed more time to amend collection procedures. In light of these comments the National Disability Administrators have revised the project timetable. What does this mean for your agency?
- The proposed April 2002 live pilot will no longer proceed.
- Agencies funded by the Commonwealth and Western Australia already participate in a full-year collection and will be asked to provide the information required for the redeveloped collection in June 2002 and then continue collecting these data items for future collections.
- Agencies funded by other States/Territories will be asked to participate in a final snapshot data collection in May 2002 (including some redeveloped data items)(see Box on page 7) and then implement the redeveloped collection from October 2002.
What the new timetable looks like
| Commonwealth and Western Australia | All other States and Territories | |
|---|---|---|
| 2002 | ||
| February | All national data collection materials finalised and available on the AIHW website | All national data collection materials finalised and available on the AIHW website |
| April | Agency training in the new collection starts (April-June) | |
| May | 22 May - snapshot day (see Box on page 7) | |
| June | Full-year collections run in WA and Commonwealth-funded agencies using redeveloped data items
|
Agency training in the new collection starts (June-September) |
| July | 1 July - continue full-year collection with redeveloped CSDA MDS data items | |
| October | 1 October - agencies start ongoing data collection of redeveloped data items ('go live') | |
| November | Agencies send test transmission of redeveloped data items to their funding department | |
| December | Minor revisions made to materials and processes if necessary following test transmission - available by January 2003 | |
| 2003 | ||
| July | Full-year CSDA MDS data transmitted to funding department, who transmit to AIHW for national collation | CSDA MDS data transmitted to funding department, who transmit to AIHW for national collation ** |
'* The timetable for Commonwealth and Western Australia is different because they already conduct full-year client collections.'
'** The frequency of data transmission will vary across States and Territories, with some departments requesting transmission of data more frequently (e.g. quarterly). Further information will be provided. '
What support will agencies be given?
Training
Training will be offered to all CSDA MDS funded agencies from June 2002 (Commonwealth and Western Australia from April). Nationally consistent training materials will be developed for the collection. All funded agencies will be invited to participate in training sessions and will be provided with a range of take-home training materials and manuals. Please contact your jurisdictional FIG representative if you would like to receive further information about training within your jurisdiction. Data Transmission optionsThe National Disability Administrators have made a commitment that the redeveloped collection will support various types of data transmission, namely:
- Paper forms' will still be accepted.
- 'Data can be downloaded from agency systems' (in a specified format). For agencies who have their own software solution in place or would prefer to purchase a commercial software product, a final national Data Transmission and Technical Guide aligned with the minimum data set will be available from the AIHW website for public use in February 2002. Agencies should contact their FIG representative before using this resource to see if any local variations have been added to the technical specifications.
- Most jurisdictions are developing 'new software tools' or refining existing software tools to support data transmission for the new collection. This means that optional software, as well as training in its use, will be provided to all interested funded agencies by these jurisdictions.
Please contact your jurisdictional FIG representative if you would like to receive further information about the data transmission options available within your jurisdiction.
What will the new collection look like?
The most significant change in the redeveloped collection is that, for most service types, outlets are required to provide information about all service users during the year (rather than just those who receive a service on a snapshot day). This means that service type outlets are required to collect and store information on an ongoing basis, for transmission to the jurisdiction at specified points in time. Figure 1 illustrates the final CSDA MDS endorsed by the National Disability Administrators for national collection. Table 1 details the data items requested from each CSDA service type outlet in the redeveloped collection. For example:
- agencies offering service types in the 'Advocacy, information and print disability' category (6.01 - 6.05) are 'not' asked to provide any information about service users; and
- agencies offering recreation/holiday programs (3.02) are only asked to provide linkage key details for service users.
- Information provided by the jurisdiction/funding department rather than the agency.
| 'Draft service type classification' | 'Service type outlet -details requested (except for those provided by the jurisdiction)' | 'Service user - details requested' | 'Services received by each service user in the reporting period - details requested' |
|---|---|---|---|
| 'Accomodation Support' | |||
| '1.01Large residential/institution (>20 people) - 24 hour care' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| '1.02Small residential/institution (7-20 people) - 24 hour care' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| '1.03Hostels - generally not 24 hour care' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| '1.04Group homes (< 7 people)' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| '1.05Attendant care/personal care' | 'All ' | 'All' | 'All' |
| '1.06In-home accommondation support' | 'All ' | 'All' | 'All' |
| '1.07Alternative family placement' | 'All ' | 'All' | 'All' |
| '1.08Other accommondation support' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| 'Community support' | |||
| '2.01Therapy services for individuals' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| '2.02Early childhood intervention' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| '2.03Behaviour/specialist intervention' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| '2.04Counselling (individual/family/group)' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| '2.05Regional resource and support teams ' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| '2.06Case management, local coordination and development' | 'All ' | 'All (except for community development activity within this service type)' | 'All' |
| '2.07Other community support' | 'All ' | 'All' | 'All (except data item on service quantity)' |
| 'Draft service type classification' | 'Service type outlet -details requested (except for those provided by the jurisdiction)' | 'Service user - details requested' | 'Services received by each service user in the reporting period - details requested' |
|---|---|---|---|
| 'Accomodation Support' | |||
| '3.01Learning and life skills development ' | 'All ' | 'All' | 'All' |
| '3.02Recreation/holiday programs' | 'All ' | 'Linkage key elements only' | 'None' |
| '3.03Other community access ' | 'All ' | 'All' | 'All' |
| 'Community Support' | |||
| '4.01Own home respite' | 'All ' | 'All' | 'All' |
| '4.02Centre-based respite/respite homes' | 'All ' | 'All' | 'All' |
| '4.03Host family respite/peer support respite' | 'All ' | 'All' | 'All' |
| '4.04Flexible/combination respite' | 'All ' | 'All' | 'All' |
| '4.05Other respite' | 'All ' | 'All' | 'All' |
| 'Employment' | |||
| '5.01Open employment' | 'All ' | 'All (except for carer-primary status, residency status, age group)' | 'All (except data item on service quantity)' |
| '5.02Supported employment' | 'All ' | 'All (except for carer-primary status, residency status, age group)' | 'All (except data item on service quantity)' |
| '5.03Open and supported employment' | 'All ' | 'All (except for carer-primary status, residency status, age group)' | 'All (except data item on service quantity)' |
| 'Advocacy, information and print disability' | |||
| '6.01Advocacy' | 'All' | 'None ' | 'None' |
| '6.02Information/referral' | 'All' | 'None ' | 'None' |
| '6.03Combined information/advocacy' | 'All' | 'None ' | 'None' |
| '6.04Mutual support/self help groups' | 'All' | 'None ' | 'None' |
| '6.05Print disability' | 'All' | 'None ' | 'None' |
| 'Other' | |||
| '7.01Research and evaluation' | 'All (except for number of service users)' | 'None' | 'None' |
| '7.02Training and development' | 'All (except for number of service users)' | 'None' | 'None' |
| '7.03Peak bodies' | 'All (except for number of service users)' | 'None' | 'None' |
| '7.04Other' | 'All (except for number of service users)' | 'None' | 'None' |
Changes in National Privacy Legislation
New privacy legislation came into effect on 21 December 2001. This legislation (The Privacy (Private Sector) Amendment Act 2000) means that all agencies collecting information about people with disabilities are required to meet certain obligations in relation to privacy. For the purposes of the CSDA MDS collection, all agencies must ensure that CSDA service users are made aware of a statement dealing with their right to privacy. To help agencies prepare for the changes the AIHW has developed a set of Data and Privacy Principles and a draft statement to use when informing service users of their rights. These are both available from the AIHW website. See AIHW website for Data and Privacy Principles and contact your jurisdictional FIG representative for further information.
Your input
Please contact your jurisdictional FIG member or the non-government or consumer representative to provide input or further comments (see Table 2). Snapshot 2002 collection Agencies funded by NSW, Victoria, Queensland, South Australia, Tasmania, the ACT and Northern Territory are being asked to participate in a final snapshot data collection in May 2002. The 2002 snapshot collection will be very similar to the collections run in previous years although some data items may look a little different. Your funding department will be coordinating the snapshot collection in May 2002 in the normal way. As in previous snapshot collections, agencies funded by Western Australia and the Commonwealth will be conducting full-year collections and will be asked to identify those service users seen on a selected snapshot day in June 2002.
| Name | Address | Phone No. | |
|---|---|---|---|
| Simon Watts | Department of Ageing, Disability and Home Care Level 13, 83 Clarence Street SYDNEY NSW 2000 |
02 9364 6968 02 9367 6830 | simon.watts@dadhc.nsw.gov.au |
| Carsten Petersen | Disability Services Department of Human Services Level 19/555 Collins Street MELBOURNE VIC 3000 | 03 9616 7934 03 9616 7272 |
carsten.petersen@dhs.vic.gov.au |
| Carolyn Webber | Disability Services Queensland GPO Box 806 BRISBANE QLD 4001 | 07 3247 3566 |
webber@families.qld.gov.au creiher@families.qld.gov.au |
| Cate Thomas | ACT Department of Health and Community Care GPO Box 825 CANBERRA ACT 2601 | 02 6205 1566 02 6205 2037 |
cate.thomas@act.gov.au |
| Dana Bensky | Disability Services Commission PO Box 441 WEST PERTH WA 6872 | 08 9426 9295 08 9481 5223 |
danab@dsc.wa.gov.au |
| Mike Griffiths | Department of Human Services Disability Services IT Support Unit Box 3-5 Darley Road PARADISE SA 5075 | 08 8207 8920 08 8207 8944 |
michael.griffiths@dhs.sa.gov.au |
| John Nehrmann | Community and Rural Health Disability Services Department of Health and Human Services GPO Box 125B HOBART TAS 7001 | 03 6230 7524 03 6230 7526 |
john.nehrmann@dchs.tas.gov.au |
| Neil Murray | Aged and Disability Care Services Department of Health and Community Services PO Box 40596 CASUARINA NT 0811 | 08 8999 2496 08 8999 2488 |
neil.murray@nt.gov.au |
| Michael Cooper | Commonwealth Department of Family and Community Services Box 7788 Canberra Mail Centre CANBERRA ACT 2601 | 02 6244 7109 02 6244 8499 |
michael.cooper@facs.gov.au |
| Julie Simpson | National Caucus of Disability Consumer Organisations Parent to Parent Association Qld Inc PO Box 434 YANDINA QLD 4561 | 07 5472 7072 07 5472 7073 |
parent@parent2parentqld.org.au |
| Sean Regan | ACROD PO Box 60 CURTIN ACT 2605 | 02 6282 4333 02 6281 3488 |
sregan@acrod.org.au |
| Ros Madden, Louise York, Chrysanthe Psychogios | Australian Institute of Health and Welfare Disability Services Unit GPO Box 570 CANBERRA ACT 2601 | 02 6244 1189 02 6244 1187 02 6244 1068 02 6244 1199 |
ros.madden@aihw.gov.au louise.york@aihw.gov.au chrysanthe.psychogios@aihw.gov.au |
'Note: This list will be updated when necessary on the AIHW website.'
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